ALDConnect Announcements – 11.12.2015

Has your child with CCALD received an allogeneic HSCT in the last two years?


If so, please ask your physician about the ALD-103 Study (Protocol), a new data collection study that is now open. The purpose of the ALD-103 Study is to better understand the safety and efficacy outcomes of the standard of care treatment for CCALD–allogeneic hematopoietic stem cell transplant (HSCT).

Participation in this study should not be burdensome to patients or their families since it is focused on data collection.

Rememebr- November is ALD Awareness Month!

Change your profile picture on social media to the ALD awareness month image in support of ALD and to help raise awareness.

To download and save the image, click here.


If you do not know how to change your profile picture, click here.

Next Patient Learning Academy

If you have not yet taken our survey for the next Patient Learning Academy planned to take place in February 2016 in Texas, please take a moment and fill out this short survey.

Please share this with anyone who may be interested.

Click here to take the survey

If you have any questions, comments, or concerns regarding content presented in this message, please contact us at

ALD Connect | 617-643-4218 | |

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