Resources & News

Ann Moser Award

Ann Moser Award

ALD Connect announced the new “Ann B. Moser ALD Community Award”, an honour which recognizes unusually impactful contributions to the ALD community at-large or major milestones in the history of the disease. The award was shared by Bob Wyborn and Associate Professor Stephan Kemp from the University of Amsterdam.

To Be of Use – a Poem by Marge Piercy

To Be of Use – a Poem by Marge Piercy

To Be of Use by Marge Piercy The people I love the best Jump into work head first Without dallying in the shallows And swim off with sure strokes almost out of sight They seem to become natives of that element, The black sleek heads of seals Bouncing like half-submerged balls. I love people who harness themselves, an ox to […]

Nursing Research Topics

Nursing Research Topics

Starting quilters need just a few items that are basic to begin with. Like the majority of interests, quilting has you to be tempted by an unlimited array of products. Get the following basic supplies were create with all by yourself. your quilting type grows and as your capabilities enhance, you can add for your device cache. Machine: there is […]

ALD Hearing on 8.27.2015

The ALD patient and physician community has advocated for years to get ALD added to the Recommended Uniform Screening Panel (RUSP). RUSP is the list of diseases that the federal government (through the Secretary of Health) recommend that all states test newborns for. The latest nomination to add ALD to the RUSP was September 2012 when the community was told […]