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Our story starts with Brendan Wyborn who was diagnosed with Adrenoleukodystrophy (ALD).
To state the blatantly obvious the vast majority of us are living in a time that has never been experienced before. Not since World War…
A list of Frequently Asked Questions for families regarding the current COVID-19 crisis and managing ALD.
In this time of transition with the Coronavirus or COVID-19 creating changes in our lives it is most important for all of those who have…
ALD Connect announced the new “Ann B. Moser ALD Community Award”, an honour which recognizes unusually impactful contributions to the ALD community at-large or major milestones…
It can truly be said that Leukodystrophy is a “Family” disorder because it is inherited genetically and therefore involves the entire family…
My daughter Armani was diagnosed with metachromatic Leukodystrophy at age 4.5 in February 2018 on Diagnosis we were told there was nothing …
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