In this time of transition with the Coronavirus or COVID-19 creating changes in our lives it is most important for all of those who have Primary Adrenal Insufficiency and Addison disease not to be fearful. There is absolutely no evidence from the World Health Organisation or Science that those with adrenal insufficiency are at an increased risk of contracting COVID-19. […]
ALD Connect announced the new “Ann B. Moser ALD Community Award”, an honour which recognizes unusually impactful contributions to the ALD community at-large or major milestones in the history of the disease. The award was shared by Bob Wyborn and Associate Professor Stephan Kemp from the University of Amsterdam.
I am very grateful for the magnificent work that Elisa Seeger, Jean Kelley, Janice Sherwood, Gina Cousineau and many others are continuing to do in getting New Born Screening (NBS) for ALD throughout the United States and the resultant success. The rest of the world is awake and working on their individual country’s requirements to achieve NBS. Professor Kohlschuetter and […]
To Be of Use by Marge Piercy The people I love the best Jump into work head first Without dallying in the shallows And swim off with sure strokes almost out of sight They seem to become natives of that element, The black sleek heads of seals Bouncing like half-submerged balls. I love people who harness themselves, an ox to […]
Another year has come around and like all New Years it brings many changes, hopes, fears and opportunities. As an almost silent contributor I would like to change that this year and particularly for those with any Leukodystrophy or life restricting disorder or disease. For those who have recently received the news that themself, or a loved one or ones […]