Educational Videos #1 | A 10 minute overview of ALD
Educational Videos #2 | AMN Exercise Video
This video was created by Ben Lenail, a 48-year old AMN patient, to highlight possible exercises (weight-bearing, balance, core strength, Pilates) for adult men and women suffering from AMN.
This video starts with a 4-minute animated “whiteboard tutorial” on the physical limitations of individuals with AMN, and then shows Ben’s exercise routine.
bluebird bio YouTube channel
Educational Videos #3 | An Introduction to Genomics 1:1
How can your genome affects your health
Educational Videos #4 | Stem Cell Transplant
Educational Videos #5 | Gene Therapy for CCALD
Educational Videos #6 | Drawn to Science: Clinical Trials
Educational Videos #7 | Young ALD Carriers: Our stories
Webinar #1 I Just Got Diagnosed, Now What?
*Please note- The link to the ALD guidelines that was shown on a couple of the slides is incorrect. The correct link is http://www.ojrd.com/content/7/1/51
Doctor Patient Webinar #2 | Save The Boys Summer Campaign
Doctor Patient Webinar #3 | Understand Walking
Doctor Patient Webinar #4 | Clinical Trials for ALD
The Invisible Family Member Webinar #5
Reflection Health: The Vera Webinar #6
Bone Marrow Transplantation for ALD Webinar #7
Women with ALD Webinar #8