Educational Webinars

Educational Videos #1 | A 10 minute overview of ALD

Educational Videos #2 | AMN Exercise Video

This video was created by Ben Lenail, a 48-year old AMN patient, to highlight possible exercises (weight-bearing, balance, core strength, Pilates) for adult men and women suffering from AMN.

This video starts with a 4-minute animated “whiteboard tutorial” on the physical limitations of individuals with AMN, and then shows Ben’s exercise routine.

bluebird bio YouTube channel

What are genes?

Educational Videos #3 | An Introduction to Genomics 1:1
How can your genome affects your health

What is gene therapy?

Gene therapy for CCALD

Introduction to Genomics 1.1: How can your genome affect your health? from Genomics Education on Vimeo.

Educational Videos #4 | Stem Cell Transplant

Educational Videos #5 | Gene Therapy for CCALD

Educational Videos #6 | Drawn to Science: Clinical Trials

Educational Videos #7 | Young ALD Carriers: Our stories

Conference Videos | GLIA Meetings | 2017




Please Click to the link to watch ALD Connect Annual Meetings

Watch ALD Connect Annual meetings