Newborn Screening Kit

We are thrilled to share with you the completed newborn screening for adrenoleukodystrophy: an advocacy tool kit. 

This tool kit has been developed as an empowering and educational resource created in collaboration with bluebirdbio, to raise awareness of ALD and the potentially life-saving opportunity newborn screening can provide.

Tool kit content include:

• The importance of NBS for ALD
• What is ALD and what is NBS?
• What is advocacy?
• Where is NBS today
• How are diseases added to NBS panels in the United States, in the United Kingdom, and in select EU countries.
• What you can do?
• Resources
• FAQ